Her first mention to her physician about the problems were passed over the first time she made them. She had symptoms that go back at least six years before diagnosis. Comparing Alice to Barbara: Barbara is three years older than Alice. I speak from some experience, since my own wife, Barbara has early onset Alzheimer's, although not the fast-acting genetic variety. it was just a frustrating experience that could be handled and planned for.
There was no fear, no distrust, no chronic anxiety. Sure it got in the way - but she was not upset for long about anything. Despite Alice's dark plans at one point (another check mark), she didn't really seem to mind having Alzheimer's. For someone who supposedly suffered from significant language problems, Alice always managed to be fully articulate when necessary. The problem rarely occurred in a significant way again.
Most problems popped up long enough for the author to tell us about them - and then she moved on. My complaint is that the author apparently had a 'check list' of points she wanted to cover, so one-by-one she checked them off. I titled my review "Made for TV Movie" because that's what it appears to be. Yet the book misses the true challenges that face the rest of us. The author did a pretty good job of capturing 'key' points about what folks experience with Early Onset Alzheimers - so if you prefer a narrative over dry descriptions of what faces Alzheimer sufferers and their families - this book is for you.
Poignant and powerful, Every Note Played is a masterful exploration of redemption and what it means to find peace inside of forgiveness. As Richard’s muscles, voice, and breath fade, both he and Karina try to reconcile their past before it’s too late. When Richard becomes increasingly paralyzed and is no longer able to live on his own, Karina becomes his reluctant caretaker.
Karina is paralyzed by excuses and fear, stuck in an unfulfilling life as a piano teacher, afraid to pursue the path she abandoned as a young woman, blaming Richard and their failed marriage for all of it. Three years ago, Karina removed their framed wedding picture from the living room wall and hung a mirror there instead. The loss of his hand feels like a death, a loss of true love, a divorce-his divorce. His fingers are impotent, still, devoid of possibility. Richard now has ALS, and his entire right arm is paralyzed. Every finger of his hands was a finely calibrated instrument, dancing across the keys and striking each note with exacting precision. From neuroscientist and New York Times bestselling author of Still Alice comes a powerful and heartbreaking exploration of regret, forgiveness, freedom, and what it means to be alive.Īn accomplished concert pianist, Richard received standing ovations from audiences all over the world in awe of his rare combination of emotional resonance and flawless technique.
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